Steve Holcomb: A Vision of Inspiration for Keratoconus Sufferers

October 19th, 2010

Steve Holcomb’s recent fight with Keratoconus is one that is still radiating throughout the world. His story is one that sheds hope and light on patients with Keratoconus, as well as those not yet diagnosed. Steve Holcomb’s dreams of gaining Olympic Gold were almost brought to a screeching halt due to his severe and progressing condition, Keratoconus.

Keratoconus is a progressive condition that gradually takes away the sight of the patient. But unfortunately Steve learned this fact the hard way. His love for the bob sled was almost stopped by this frustrating and painful condition.

His care for his team mates prompted him to make the hardest decision he ever had to make, the decision to retire from the sport he loved so much. His team mates were saddened by this decisions and refused to give up on him.

In one last effort to restore his sight, Steve’s team doctor researched treatments for keratoconus and decided to send him to Dr. Brian S. Boxer Wachler. Steve learned about a new treatment that maybe able to restore his vision. With a bit of hope and in the hands of Dr. Brian, Steve received the C3-R ® or Collagen Cross-linking with Riboflavin a non-invasive procedure that strengthens and stabilizes the cornea.

The procedure only takes about 30 minutes and is done in the doctors office. The procedure involves placing drops of Riboflavin on the cornea and using a UV light to activate the medication. The drops help strengthen and stabilize the effects of Keratoconus.

About 3 months following Dr. Boxer-Wachler implanted the Visian ICL which corrected his Myopia. The success of the procedures prompted Steve to come out of retirement and go forward to win Olympic gold for the US which hadn’t been done for 62 years! True teamwork and the help of the Boxer Wachler Vision Institute aided in an event that will forever be in the history of America for years to come.

The C3-R ® procedure is now named for Steve titled “Holcomb C3-R ®” another first for the history of medicine. It is the first procedure named for an athlete in the world. True inspiration for all who suffer from this debilitating condition.

More helpful information is at AllAboutVision.com

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Progressive Keratoconus: 4 Tips to Improve Your Everyday Life

April 3rd, 2009

 

Our journey through life is often a bumpy one. Many of us have trouble coping with stress and the riggers life brings without throwing Progressive Keratoconus in the mix. However finding new ways to cope with your disease can help reduce extra problems along the way. Below are a few tips to assist you in making life a little easier:

 

Tip 1: Educate yourself:

Your doctor can do a lot for you but when you take the initiative to find out about your illness you can ask important questions, feel more comfortable with what they are telling you, learn whys you can help yourself.

 

Tip 2: Find a good doctor:

It is just as important to find a eye doctor you are comfortable with as it is to find a general physician. Make sure that the doctor you choose is comfortable with you asking questions, they are concerned about you, and that they have proper time for you. If you notice it is hard to schedule an appointment, or they take more than 24 hours getting back to you than you should find another doctor.

 

Tip 3: Reduce the amount of times you rub your eyes:

Progressive Keratoconus can be increased by excessive eye rubbing. To ensure you don’t create anymore damage speak with your doctor about dry eye, allergies, and other conditions that can cause itchy and irritated eyes. They may be able to prescribe drops or medications to help you combat these problems.

 

Tip 5: Find a good contact lens fitter:

Find a contact lens fitter that sees Keratoconus on a regular basis i.e. weekly or even better daily. It is important that they offer a full range of contact lens options, soft toric contacts, hybrid contacts, piggy back lenses, Rose-K, Dyna-Z intralimbal, and Mini-sclera are some of those options that should be available.

 

Most of all pamper yourself. Don’t worry about all the things that are wrong or what may happen 5 years from now find out how you can treat your condition now. There are many treatments out now that can greatly improve even reverse the damage of keratoconus. Focus on your treatment, taking care of yourself, and your education. You are your best tool.

To learn more on Keratoconus Visit the American Keratoconus Association.

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3 Tips For Managing Your Keratoconus

March 7th, 2009

Progressive Keratoconus [a.k.a KC] can be a difficult condition to live with. The loss of vision can be frustrating and disruptive to regular daily activities we know and love. However Keratoconus can also be difficult for families with suffering loved ones.

Keratoconus affects about 1 in every 2,000 Americans. Keratoconus however is not just a problem in the US people are suffering everywhere. World-wide the disease is estimated to effect 50-230 in every 100,000 patients.

Many patients have to cope with symptoms of keratoconus daily. Managing symptoms can be difficult. They can consist of:

  • Eye Strain- producing headaches and blurred vision
  • Poor Night Vision- producing halos, double vision, and vision loss while driving at night
  • Photophobia- [Sensitivity to light]- producing headaches, watery eyes, and dark spots

Below are 3 helpful things to think of when managing your Keratoconus:

Tip 1: Finding the Right Doctor- Determining if your doctor is the right one for you can be difficult. Making sure you check the very basic of things is important. Here are a few things to ask to see if your doctor is right for you.

What do you specialize in? -  It is important your doctor works with patients with                      keratoconus.

What is your success rate in treatment of Keratoconus?

What treatments does your office provide for patients with Keratoconus?

Tip 2. Assess your treatment options- Don’t wait for your doctor to tell you what options are available. Do your homework, evaluate your options and write down any additional questions you have for your doctor.

Tip 3: Support Groups- Support groups not only assist you with coping with the daily stress of Keratoconus, but it helps your family deal with it as well. Finding a support group can give your and your family comfort, knowledge, and friendship while you are being treated for your condition.

To Learn more on Keratoconus visit Wikipedia.

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True Testimonials – Kenny Atkins, 1st US Reported INTACS for Keratoconus Patient

February 10th, 2009

When I started college I was an Ocean Lifeguard. At school, I found it harder to focus on textbooks. I thought it was just the chlorine from the pool. I had my eyes checked and I was diagnosed with astigmatism in one eye and I started wearing glasses while studying. As lifeguarding became my chosen profession, I found it hard to focus in the afternoon as the Southern California sun set lower in the sky.

 

When running out for a rescue, I would often lose my prescription sunglasses. I tried soft lenses, but sand got under them and that was uncomfortable. The lenses often slid up behind my eyes and even floated away when I swam. I often went without correction because of the irritation. By late afternoon I would see double images of objects far away, such as a boat on the horizon.

 

When laser eye surgery became available, I was excited. However, I was discouraged to learn that I had keratoconus in one eye and was not a candidate for LASIK. I came across an article and some studies by Dr. Boxer Wachler. I was optimistic after my first meeting with him in 1999. He explained a new procedure Intacs that would help correct my keratoconus and vision. Back then Intacs had not been reported on a patient with keratoconus in the United States, but he felt it was ready to be attempted. As I was a good candidate, I welcomed the opportunity.  A week after surgery, the vision in that eye improved to a great degree. I was able to see nearly equally with both eyes and it was unnecessary to wear glasses or contacts at work. After a few months I noticed that I was relying more and more on the corrected eye!

 

It has now been about eight years since I had Intacs and I still do not wear corrective lenses. I am able to pick objects out of the glare on the horizon and street signs on the freeway well before I need to turn. The freedom I have gained and the confidence I now have in my vision has proven invaluable to me and my ability to continue in my profession.

 

The ability to see well in lifeguarding is critical, and I no longer have the worry that I might miss something that could result in someone’s pain, suffering or their life. I owe this self assuredness to Dr. Boxer Wachler and to Intacs.

 

I feel fortunate to have been at the right place at the right time in history. I can appreciate the saying, “Nothing ventured, nothing gained.” I am glad that my pioneering experience helped pave the way for the thousands of other patients who have subsequently benefited from innovative advancements for keratoconus. I am pleased to dedicate this book to the thousands of future patients who will benefit from these innovations.

 

- Kenny Atkins, first reported Intacs® for

keratoconus patient in the United States

 

 

Learn more about keratoconus: http://en.wikipedia.org/wiki/Keratoconus

 

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Bobsled Driver Sees Better Things Ahead

January 21st, 2009

Olympic Bobsledder- Steven Holcomb has a lot to say in this article from USA Today Written by Tim Reynolds…

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Olympic bobsledder Steven Holcomb was speeding down the icy track for a preseason training run a few weeks ago, when a piece of duct tape tore off the chassis and whizzed past his helmet. His teammates weren’t bothered. They’d seen it happen dozens of times. Holcomb, though, was spooked. Until then, he’d never seen that before.

In a sport that demands razor-sharp hand-eye coordination, Holcomb excels even with a degenerative eye disease called keratoconus that makes reading a challenge - say nothing for steering a bobsled in a snowstorm. “Sometimes, I really didn’t see all that much out there,” he said.

Given his success, that’s hard to believe. Holcomb is a national champion, a World Cup star and was the top American driver at the 2006 Turin Olympics. He navigates slippery tracks at 80 mph in a sport where tiny mistakes can lead to disaster. Yet he did all that with vision so blurry that he couldn’t read the big “E” atop an eye chart from more than 6 feet away. A $15,000 procedure may have saved Holcomb’s vision - plus could nudge him closer to Olympic gold in Vancouver in 2010.

“If he was in the top five in the world before, I wouldn’t be surprised if he’s soon to be the top in the world,” said Dr. Brian Boxer Wachler of Beverly Hills, Calif., the corneal surgeon who developed the procedure that Holcomb underwent, Holcomb would love to see that.

Keratoconus causes the cornea to bulge outward, causing blurred vision. In some mild cases, glasses or contacts can be the answer. In Holcomb’s case, neither did the trick. Lasik didn’t work, either; Holcomb tried that in 2000, but was back in glasses within a year. So after last season, he decided he’d either find a solution or retire.

“They couldn’t make contacts strong enough for me anymore,” Holcomb said. “And since it’s a progressive disease, I had to get a new prescription, a stronger prescription, every three months. Finally they said, ‘You know, we can’t make them any stronger.’ So it was the end. For a while, I thought it was the end.”

U.S. bobsled coach Brian Shimer didn’t want to see that happen. He researched options, found Boxer Wachler, and sent Holcomb to California to meet the doctor. Holcomb was deemed a candidate for Visian ICL, or Implantable Collamer Lens, a 9-minute surgery where a contact is embedded behind the iris. It’s permanent, and so far, it’s worked for Holcomb.

His vision, once as bad as 20-1000 - which gets defined as “profound visual impairment” - is now close to perfect. He sees things on tracks that he never knew were there before.

“I was part of the FDA approval study for it,” Holcomb said. “I couldn’t wear contacts the day of the surgery, so they literally had to walk me around the room. And then they did it, I got up, and just like that, I was 20-20. It’s incredible. I call it an eye-opening experience.” Pun intended, of course.

Holcomb didn’t just suffer from keratoconus, but also was extremely nearsighted. So Boxer Wachler - who has performed similar procedures before live on national television, plus has worked with other athletes, most notably Los Angeles Lakers’ guard Derek Fisher - began the process by having Holcomb undergo what’s called C3-R, something that strengthens the anchors within the cornea and minimizes the bulging effect.

It’s relatively new technology and isn’t offered by many eye doctors yet. Boxer Wachler is considered the pioneer in this sort of work. “We’ve been doing this for five years,” Boxer Wachler said. “It’s not experimental for us. We call it an off-label procedure.”

But because of the costs involved, Holcomb almost decided not to undergo any procedure. Holcomb isn’t a rich man, by any stretch of the imagination. Bobsledders don’t get into their sport for money; it’s rare to find a sled that turns a profit at the end of a season, no matter how many races a team wins in a given year. The technology is costly, the perks are few, and when Holcomb was told how much Visian ICL would cost, he initially balked at going forward.

“It was every amount of prize money I’d ever won,” Holcomb said. “So the U.S. Bobsled Federation stepped up and donated, and the U.S. Olympic Committee stepped up and donated, and now I hope they can collect on it.” That shouldn’t be a problem.

When the World Cup season starts in Germany in a few weeks, Holcomb will be among the favorites once again. He ended last season ranked fourth among drivers in two- and four-man bobsled, and now with his vision no longer a stressful issue, he can’t see any reason why he shouldn’t improve on the track.

Now that I can see, things are starting to click,” Holcomb said. “I already could feel out there on the track. It’s like putting a face to a name now. My eyes don’t hurt. My head doesn’t hurt. Before, I couldn’t do anything. I couldn’t even play catch before. Someone would throw me something and it’d hit me in the face. Now I can focus on what’s important out there.”

To learn more on Keratoconus visit the American Academy of Opthamology

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True Testimonials: Seeing Through the Haze~ Meet Catherine Bally

October 29th, 2008

Catherine has struggled for many years with the deterioration of her vision. As most Keratoconus patients do she has had a number of different corrective eye wear including Hard contacts which are many times difficult to handle creating irritation to the eyes, pain and discomfort – to having soft contacts that still don’t provide her with adequate vision.

Catherine started wearing the Hard contacts as a teen has suffered still with the problems of vision disturbances. Her Keratoconus had created a haze over things she saw making it difficult to see clear enough to make turns and walk down and up stairways while walking. Sometimes getting help with walking from her teenage children.

Catherine has gone to several ophthalmologists over the years. Receiving the same answer “We don’t know how to improve your vision.” Some requested she get a cornea transplant that even see considered but doctors were hesitant to perform. Recently Catherine did a search on treatments for Keratoconus and found Dr. Boxer Wachler.

She discovered that there were treatments that could help her with her severe nearsightedness and progressive Keratoconus. She immediately had an evaluation. Dr. Boxer Wachler performed 3 Treatments on Catherine’s eyes giving her remarkable results. In just 24 hours she stated:

Quote:

“For the first time in my life ever I can see things Clear”

Catherine is walking down the stairs without fear of falling, bending corners, and has the freedom of living a normal life again. Although see still wears glasses Catherine is very grateful for the procedures she received and to Dr. Boxer Wachler who gave her what see always dreamed…vision.

The procedures performed on Catherine where Intacs, C3-R®, and CK. These procedures can stop the progression of Keratoconus and help reverse the damage of Keratoconus on the eyes. Catherine had severe damage to her eyes so she still will need corrective lenses but her vision has improved drastically. The procedure affects each patient differently depending on the severity of the Keratoconus.

For more information about Keratoconus visit AllAboutVision.com

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